Monthly Archives: April 2015

Update on cessation of Seroquel

Here is the story of Seroquel without humor or satire. After last night’s phone call, I find no more humor or patience in regard to the poor treatment I have received from this provider. There is a back story concerning my three sessions with this provider but it’s unlikely that I will discuss this in a future post. The following is the basis for a letter or email I may send to an appropriate person or department of my health care provider agency. I haven’t decided yet.

Notes: Discontinuation of Seroquel

Appointments with Shari Green, CNA: three appointments total; March and April 2015

I received a phone call on 4/29/15 at 6:45 p.m. from Shari Green, CNS

Shari Green, CNS said she was calling to see “if there was anything she could do to help me.” I had cancelled an appointment with her that had been scheduled in early May indicating that I would not be rescheduling. This is the only reason I could think of that would prompt her to call me. I was surprised that she called me at home and in the evening. I didn’t like that she had. It seemed inappropriate and made me anxious.

I asked her why she had told me to stop taking Seroquel all at once and explained that I had significant side effects from the abrupt withdrawal. She side-stepped the question by saying that I had told her I had 50mg Seroquel pills from the previous prescription and that during our last conversation, she had told me to use those 50mg pills if I needed them.

We did have that conversation but not in the context that I would take the pills if I got side effects from abruptly stopping Seroquel, that was never discussed, but rather in the context that if my original symptoms returned I would have the drug available to me. However, she hadn’t specified the amount I would take or the duration. If I was expected to take the amount I was taking before the medication was stopped, it would have been Seroquel XR 150mg and the regular 50mg (non-extended release) pills would not have been relevant. Since the 50mg pills were to be used if needed, then less than 150mg was what was recommended.

For me, there’s a big difference between knowing that you may have significant side effects from abruptly stopping a medication and realizing that the symptoms the medication was designed to alleviate have returned. I am aware that one needs to taper off of some medications but I did not think there would be side effects from abruptly stopping Seroquel because she didn’t tell me it was possible.

I am not mistaken nor did I misread the conversation we had at our last appointment although Shari Green tried to convince me that I had during the phone call.

As the conversation continued, I became more and more stressed; I found it difficult to continue. She sounded somewhat defensive and that made the conversation awkward for me.

I told her that “I didn’t care what she said” and that I would not be seeing her again and I wouldn’t be changing my mind and then I hung up the phone.

Afterwards, I took an Ativan and calmed down but I was unable to fall asleep that night until the early morning hours. As a patient, I have never had a practitioner call me at home and have this kind of conversation.

After realizing that I was experiencing side effects from stopping the medication, I researched “stopping Seroquel abruptly” and found the following information:

The FDA MedGuide indicates that:

“If you suddenly stop taking SEROQUEL, you may have side effects such as trouble sleeping or trouble staying asleep (insomnia), nausea, and vomiting.“

The drug manufacturer’s website states:

“Do not stop taking SEROQUEL XR without talking to your doctor. Stopping SEROQUEL XR suddenly may cause side effects.”

The electronic Medicines Compendium (eMC):

“Discontinuation symptoms (symptoms which occur when you stop taking Seroquel) include not being able to sleep (insomnia), feeling sick (nausea), headache, diarrhea, being sick (vomiting), dizziness and irritability. Gradual withdrawal over a period of at least 1 to 2 weeks is advisable.”

Two days after stopping Seroquel, I experienced headache, nausea, irritability and dizziness. These symptoms remained until I resumed taking Seroquel. More significantly to me, two days after stopping Seroquel, I experienced numbness/tingling in my left arm followed by numbness and tingling in my left hand and later the same for my right arm. In addition, after two days I became itchy on one spot on my body and after it stopped, it would appear in a different location. The itchiness would subside quickly or at other times last for hours. The itchiness ranged from mild to significantly irritating.

All of my concurrent side effects stopped one day after resuming Seroquel (100mg).

This entire event was extremely distressing. Anxiety is one of the significant symptoms for which I seek treatment. I am completely dissatisfied with my recent treatment by Shari Green, CNA (this applies to all three of the times we met but for different reasons not mentioned in this email).

Health Care Wheel of the Unfortunate

serquel_

Escaping the Monsters

A few years ago, my doctor closed his doors and moved to NYC. I got a new doctor, he was an idiot and I saw him only once. The next one left the provider network after seeing her four times. She prescribed a new med. It came with unacceptable side effects and I stopped taking it after only 4 days. The one after that met me at our first appointment WITH her replacement (she was also moving on) and this current one has seen me for less than 45 minutes (across three sessions) and is already wanting to change THREE of my current meds. That’s so stupid. I was doing excellent with the drug regimen I was on; it was a regimen that took years of trial and error to formulate. I pretty much ignored her recommendations.

At the onset, I told her my goal was to evaluate all my meds and lower them to the lowest therapeutic doses… Clearly she was not used to someone being an active participant in their health care because her response was lackluster at best. In fact, she had little reaction to my stated plan. But at my insistence, “we” reduced Seroquel from 200mg/day to 150mg/day. That went well so 2 weeks later she told me to stop taking Seroquel altogether. This action put her in the “idiot” category.

I stopped cold turkey; after three days I started to experience side effects from abruptly stopping.  I thought they were new problems and some of them were very unnerving. I didn’t associate any of the problems with withdrawal from Seroquel. It didn’t occur to me that she would tell me stop taking a med abruptly if a gradual process of weaning off the drug was the proper procedure. Then, two days ago I Googled “abruptly stopping Seroquel,” and the drug manufacturer’s website (as well as others) very clearly state that Seroquel should not be stopped all at once. I found out that many of the side effects I experienced were common side effects that people have when Seroquel is discontinued without a process of tapering off first.

If you feel you need to stop SEROQUEL, talk with your healthcare provider first. If you suddenly stop taking SEROQUEL, you may have side effects such as…”

I am now in the process of tapering myself off of Seroquel without the guidance of a “professional.” I have a wheel barrel full of Seroquel from past prescriptions and I’ve come up with a very conservative schedule that will allow me to quit without any problems.

I sent a message through my health care provider’s MyChart system indicating I would not be seeing this current provider again. So far, no one has asked why but I will have no problem telling someone if they ask.

When I get the energy, I will find the next fool to play with my brain chemistry. Sometimes, I think I was better off before I took any meds at all and self-medicated with alcohol.

A little real-world David Thorn action:

From: Sylviane Diouf [mailto:sylviane.diouf@gmail.com]
Sent: Saturday, April 25, 2015 2:25 PM
To: info@misophonia.com
Subject: self-test

There is no self-test on the page, only comments and results. Add a link to the self-test

SD

 

On Sat, Apr 25, 2015 at 3:25 PM, Paul N. Dion <paul.dion@misophonia.com> wrote:

This is the self-test: http://www.misophonia.com/misophonia-self-test/ it is a self-examination and assessment tool.

~Paul N. Dion

 

From: Sylviane Diouf [mailto:sylviane.diouf@gmail.com]
Sent: Saturday, April 25, 2015 2:27 PM
To: info@misophonia.com
Subject: self-test

It’s not a test, then, only an assessment “tool” based on minimal descriptions of respondents’ responses to questions or situations that are not made available to the reader. Rather worthless.

 

On Sat, Apr 25, 2015 at 3:28 PM, Paul N. Dion <paul.dion@misophonia.com> wrote:

I appreciate that you took time out of your day to tell me how to present the contents of the website and then follow up by sending me an insult.

Enjoy the rest of your day.

~Paul N. Dion

spiderdrawing

Here is a little spider for you as a reward.

 

It’s me again, the religious moderate.

dunce idiot man

An asshole in dunce cap

Religion is everywhere, I can’t escape it. I know that I can’t escape it but I don’t have to like it or understand why religion permeates our society. (And others) (Well, actually ALL others) I especially don’t like it splashed all over my “relax and be entertained TV time” in the evenings. WHY does anyone need to know the religion or even the fact that actors and reality TV stars have any deluded religious proclivities? How is this relative to the plot of a show or the outcome of the life or death situation of when people are building a tree house?

How many crucifixes and generic crosses are necessary to include in the background of the camera shot? I bet you don’t even notice them. I do. People wearing crosses on necklaces…? That’s Impossible to count. How about singing contest contestants, football players and worm eating Swedish plumbers that point to the sky when something fortuitous happens to or for them and look like they’re silently trying to say: “look up, there’s a falcon with a rat in its mouth.”

TV producers, writers and camera operators seem to be in cahoots in a concerted effort to ram religion down our throats. Think about it. How is this advantageous even to the Christians themselves? Is it religious self-soothing or is it that they have to be subliminally reminded of their sinful nature? Maybe they need a constant barrage of visual threats to remain fearful of their loving God and make them toe the line. I don’t think that seeing religious toys, costumes and artifacts is converting anyone from a different religion to Christianity or inducing atheists to wake up and smell the blood of Christ.

This religious arrogance operates with impunity. It is celebrated by the majority of Americans as though it was hard-wired into every human being’s nature. As with most religions, the idea that anyone could have a different take on reality is nothing less than anathema. Give me your tired, your poor, your huddled masses yearning to breathe free… as long as they’re Christian.

I think my all-time favorite TV event EVER was watching Wolf Blitzer conclude an interview with a woman who survived a tornado by making some last minute decision, and said to her: “I guess you gotta thank the Lord, right? Do you thank the Lord? For that split second decision? ” She replies; “actually, I’m an atheist.” PRICELESS.

One more comment on death…

The people who say they’ve died and been revived or sent back by Zeus because it wasn’t their time are idiots. Why? Because if you’re revived or miraculously “come back from the dead…”

dead

Dead is dead. Gone. Not coming back. Not being sent back, just DEAD, DEAD, DEAD. Dead is a one-way journey. That’s the fucking definition of dead.

Flea Market

flea market in my garageThere’s more in the flea market than what is pictured here. I’d say about half of the items I’m getting rid of, I mean including in my flea market were on the table at the time.

Did I mention that everything is free?